Monday, September 23, 2013

What a Lupie time in my life!

So this is my first post. I set it up sometime ago. Now I am getting back into the groove of things.
So where to begin? I was diagnosed with Lupus SLE by my incredible rheumatologist. The first
rheumatologist was a quack. He told me it was all in my head, I was depressed (I wasn't), and that
maybe I had fibromyalgia. I didn't pass any of the symptoms tests of fibromyalgia. He was talking out
of his a$$. I made a beeline out of that office and NEVER went back. I was furious. A good rheumy
is had to find in WNY. I finally got in with my rheumy when he opened a satllite office. WHOO HOO.

First thing they  tell me after reviewing tons of blood test, exam, hearing my story... Thank God you
found us. You could have been dead within two years with no treatment. WHAT?? But that;s ok.
You are here now. You have Lupus SLE. It was so easy to diagnose, they could not understand why the other dr missed it. In order to be diagnosed with lupus, you need 4 our of 11 symptoms to be positive. I had 7. My bloodwork was all whacked. Inflammation, Inflammation, Inflammation. Before, I left the office that day. I had a diagnosis, I had meds to start taking, and I had a lab script for
THIRTY-TWO tubes of blood. Yes they were being quite thorough.

Crazy. My blood work came back the same. Quest was not happy to see me for my bloodwork. It tooik 4 techs taking it and spinning it and splitting the vials..Chaos. More later>>>>